My 2nd Submission

This submission is about the lack of In Home Respite Care. Wodonga council provides subsidized In Home Respite Care which sounds fantastic.
Although it is provided, this does not reflect it’s availability.
I am eligible for 3 hours IN Home Respite Care per week and choose to use it in one 4 hour block per fortnight. Meaning I would have hours left over. However when I have needed respite care at other times I have been told by council staff to seek help else where.
With the aid of my son Alexander’s ISP I also receive 4 hours per fortnight IN Home respite care but again when I have needed care at other times, it has been rejected.
In total I receive 8 hours per fortnight respite care for my 18 year old son Alexander who has a profound disability due to a unique chromosomal abnormality.
He requires full assistance with all ADL’s and also has uncontrollable epilepsy which has resulted in fractured bones and many cuts and abrasions.

It seems the $$$ the government provides for the disability sector does not reach the people  the $$ money is supposed to be for.
I happily do my best to provide Alexander with a full and happy life, but what about mine! I may even like to have a partner and leave the house? Next year Alexander won’t be at school and what then? 

Cate Perry