who should be eligible
Similar to the criteria used for cares allowance currently but if it is ovious that this person is never going to not meet the criteria money could saved by them not needing to be reassessed every 2 yrs 
Increasing the number of people that can do the assessment such as physio, OT, speech pathology, teaches, nurses in GP surgery.
 their should be a provision made to give support to people on medically  necessary diets for severe allergies when the diet considerably increases the food bill.
Considering the impact on a family when a young income earning person suddenly needs full time care currently if the partner works they are only entitle to the cares allowance but they probably have a morgage children to raise etc shouldnt they at least be intital to some kind of pension.  
 
who gets the power
case workers allocated to families from the date of diagnosis that can guide them though what they are entitle too.
in remote areas this could be done by Gp or practice nurse
Families need choices if they feel they can manage their own funding and povide care for their loved one or the disabled person can manage there own funding. There also needs to be a body that families can trust to administer funding when there is no one else to do it
 
what services are needed and how should they be delivered
respite services need to be available to all who are eligible you should not have to beg for it. It should also be available to parents of children under 3 when the child requires 24 hr care.
Assessing resources should be easier then it currently is you should be able to leave your email address or mailing addess at one place and recieve all the information you need and return application forms etc instead of making  lots of phone calls.
we are repeatedly told earily intervention is so important to your childs future on the central coast NSW there is only one place that takes children with disablity of any cause under 4 and the waiting list is at least 1yr more earily intervention is desperately needed. Yarran on the central coast has a great model but wander from year to year if they 'll have funding to keep going they need more funding to increase services and decrease waiting times.
There should be an internet site set up that enables you type in type of disability age of person that lists what services are available at the moment navigating  services is like navigating a mine field. I am a well educatered and a registered nurse I hate to think how people with litercy problems or english as a 2nd language get on.
Residental schools need to be available for people who need them hopefully this would reduce the number of disabled children in foster care.
Special transport should be an  intitalment of all children who would (if capable of catching public transport ) be  entitle to a bus pass  automatially. 
Facilliates set up for young people requiring high levels of care wether such a person has  cerebal palsy, motor neurone disease Ms etc.
Hostel type accomodation for young people with intellectual disability planning for long term care should commence for these people at the time of diagnosis usually being about 18yrs parents should not have to spend the whole of their child's life wandering what will happen to this child when they can no longer care for them. Why just because you where unlucky enough to have a disabled child should you feel obligated to care for them as adults because there is no good quality care available.
Schools for children with disabilies should take priority for resources and safety of these children should be a priority eg adequate fencing to prevent children escaping.

Funding
Funding this program would require a small tax increase but I feel most people would consider it worth it if they could actually see the results. Cuts in government waste would help for eg the school hall scheme if the money was given to the schools and contracted out locally to the  school community the job would be done cheaper allowing any left over money to be spent on other resources for the school that the goverment would not have to fund at a later date eg school in my local area did just that for a fence and saved $ 40000
there is a lot of waste in our hospital system 
doctors need to be accountable for the tests and treatments they order is it reasonableto do expensive tests on patients when they already know the results  treatments on pt s without fully explaining side effects etc because our society have a problem with admitting that people are dying.
 
Eleanor lord
I have a severely intellectually disabled 6 yr old